It was their responsibility to tell her they were taking the cells, and that they were going to use them for science. This could have been easily avoided from the start if the scientists notified Henrietta that her cells were being used for science and for learning, and that way she and her family would know about all of this. How do you think this could have been avoided? What responsibilities did the medical researchers, Johns Hopkins, and other institutions have toward the family? The family was devastated to learn this and had no understanding of what happened or why. Such issues include, but are not limited to, obtaining informed consent prior to using tissues from clinical sources if individually identifiable, the need for education of research volunteers about what may happen to biospecimens collected for future research, and the need for transparency about forms of compensation or whether or not gain-sharing from research results is possible or even appropriate.5 In this column, we call attention to efforts by Tuskegee University and the Commonwealth of Virginia to preserve the legacy of Henrietta Lacks and to the unfolding ethical and policy impacts of the Henrietta Lacks story.Non-Science - The Lacks had no idea that their mother’s cells had been harvested and used in research until 25 years or so after her death. The Lacks, who largely remained uneducated, were confused as to how the cells lived years after their mother’s death. In Chapter 25 it mentions that the Rolling Stone article started a flurry of interest in HeLa because of the civil rights movement and the injustices toward blacks were quite high. This comes several decades after the initial procedure and as a complete surprise and shock to the family. Throughout the whole book, race was a huge issue, but especially in this part it played a completely different role in the way the Lacks family was treated. In today's human subjects and big data research landscape, the story has also brought to the limelight many bioethical issues worth considering. In the final part of The Immortal Life of Henrietta Lacks, Rebecca Skloot details the Lacks’ revelation that their mother’s cells had been harvested without consent. 1,2,3 Her story illustrates how intentions in the name of scientific and medical advancement can have unanticipated consequences such as privacy violations and consent breaches.4. Laypeople may be unfamiliar with Henrietta Lacks, but most scientists in the fields of human biology and medicine recognize Lacks and have encountered her "HeLa" cell line in biology laboratories and biomedical research. Of her descendants cannot even afford healthcare. Reaping the rewards of Lacks’ cell line for decades, many Remains that while the pharmaceutical industry has been 346 Deborah started wondering if instead of testing the Lacks children for cancer, McKusick and Hsu were actually injecting them with the same bad blood that. Single cell is microscopic and almost weightless. More than 350 million feet, which is astounding since a
Metric tons if lined up end-to-end, they would measure
Scientists estimate that if all of the HeLa cells everĬultured could be weighed, they would exceed 50 million have helped with some of the most importantĪdvances in medicine: the polio vaccine, chemotherapy,Ĭloning, gene mapping in vitro fertilization” (SklootĢ010, 2). Space missions to see what would happen to cells in zero “bought, sold, packaged, and shipped by the trillions to Since her deathĪt the age of thirty-one in 1951, Lacks’ cells have been Removed and cultured by researchers at John Hopkins originated fromĪ sample of Lacks’ cancerous cervical tissue which was That came to be known as the HeLa strain. The first two letters of her first and last names). Line used in science, HeLa (an abbreviation consisting of Friday, JanuThe Secret Life of Scientists and Engineers Receive emails about upcoming NOVA programs and related content, as well as featured reporting about current events through a. The African American woman behind the most prolific cell
Immortal Life of Henrietta Lacks, journalist Rebecca SklootĮxposes the heretofore untold story of Henrietta Lacks, In her meticulously researched nonfiction investigation The
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